I am a technology entrepreneur with 35 years of experience in software development, the last 15 focused on healthcare and medical research. I was cofounder of Recombinant Data, a software company that implemented database technologies for academic medical centers. Recombinant was acquired by Deloitte Consulting in 2012.
In 2013, my mother was diagnosed with Sjögren’s syndrome. I learned that it was autoimmune and as I researched her condition learned that patients who end up diagnosed with autoimmune diseases are often misdiagnosed for years before that diagnosis is made. I decided to build a registry for all autoimmune diseases, modeled on the National Cancer Registry, to improve statistics and research on this important class of disease.
Note - my wife had me wearing a bowtie years before I got involved in medicine. To be clear, I am not a pediatrician and not a doctor of anything.